Life of Logan: Not So Distant Future

Wednesday, July 8

Not So Distant Future

I’m counting down the days to July 18. It’ll be here quick enough, but I can’t wait! It’s going to be a day like we’ve never experienced before. Logan will be participating in Tri Del Sol, his first ever triathlon! I’m just a wee bit excited! Can you tell?

This is all made possible by myTEAM TRIUMPH (mTT), a superb charity inspired by Team Hoyt. If you’ve not heard of Team Hoyt, please take five minutes and watch this. MyTEAM TRIUMPH makes it possible for people of all ages with disabilities to experience the thrill of the race. In short, Logan is the 'Captain’ and the athletes pushing and pulling him are his ‘Angels’. I can’t possibly say enough about the entire mTT organization. They are nothing less than phenomenal.

On July 5th we had a practice run. The experience was truly amazing. We can’t wait for the real deal. Want a peek of what’s to come? Check out these videos and a couple of photos.

12 superheroes sound off:

Joe and Leanna said...: So excited for you! Logan looks to be having a blast!; July 9, 2009 1:41 AM
kirstenpetree said...: very cool!!; July 9, 2009 9:34 AM
Stephanie said...: How fun!!!! What an awesome opportunity that is! Can't wait to see more pictures and hear all about it!; July 9, 2009 9:41 AM
The Sweet Life said...: I think it is awesome that Logan will be participating in a triathalon!! I watched that video in one of my classes last semester and it gave me chills. It was so inspirational! Good luck! I hope you get to post pics from the event.; July 9, 2009 10:21 AM
wherever HE leads we'll go said...: That is SO exciting. What an amazing opportunity. I have heard a bit about Team Hoyt - WOW!; July 9, 2009 11:09 AM
Melanie said...: I am so excited for you guys. I'm watching the video and I don't know what came over me.......but sheesh...I gotta go fix my make-up!

That is amazing that team you have there. I wish I could do things like that for Daniel. It is amazing.; July 9, 2009 11:41 AM
Annette Piper said...: Wow, how great to be able to participate in something like that!; July 9, 2009 5:35 PM
ANewKindOfPerfect said...: Oh my gosh, that is so exciting! I watched the video, and wish that was near us. It's a great idea. Logan will have a blast!; July 9, 2009 7:36 PM
Libby said...: Oh thats so awesome!
I hope its wonderful!
=]; July 9, 2009 10:42 PM
Lori said...: How wonderful!! :) ♥; July 10, 2009 10:22 AM
Midwest Mommy said...: Oh that is awesome!; July 13, 2009 4:29 PM
mommytoalot said...: Whoooo hooooo
that is so awesome; July 14, 2009 9:12 PM

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Did you know?

- Cerebral palsy is not a disease, nor should it be considered or referred to as such. It is a group of chronic conditions affecting body movement and muscle coordination caused by damage to one or more specific areas of the brain.

- CP is not communicable and does not worsen over time. However, secondary conditions due to CP can and often are progressive.

- 1 in 278 children have cerebral palsy. This number is configured from only three states: Georgia, Alabama, and Wisconsin. Can you even begin to imagine the numbers if there was a national surveillance study?

- 75% of people with cerebral palsy have secondary diagnosis such as epilepsy, mental retardation, autism, hearing and vision loss.

- People with cerebral palsy are at higher risk for developing scoliosis, joint contractures, bone deformities, fractures, muscular atrophy and chronic pain.

- The average lifetime cost for just one person with cerebral palsy is estimated to be over $1,500,000 above and beyond the cost of living for an average citizen.

- The NIH invests over $28 billion annually in medical research. Cerebral palsy received $16 million in 2007. That equates to less than 0.05% of the annual NIH budget.

- The Centers for Disease Control and Prevention (CDC) reports the prevalence of cerebral palsy in children is higher than childhood cancer, hearing and vision loss, spina bifida, hemophilia, fetal alcohol syndrome, cystic fibrosis, and similar to the prevalence of autistic disorder in 8 year old children. Yet, no comparable national surveillance study of cerebral palsy exists.

- There is currently no cure for cerebral palsy. In over 50 years, treatments for CP have not progressed much at all. In fact, today, there remains little consensus among medical professionals regarding what causes CP or how best to treat it. Why do 800,000 or more Americans have CP, and yet we don’t know much more about what causes it or how to prevent it than we did a half century ago?

Sources:
http://www.cdc.gov/Features/CerebralPalsy/
http://www.reachingforthestars.org/RFTSFactsheet.pdf
http://www.nih.gov/news/fundingresearchareas.htm